I just talked to Dr. Martin. The fact that she didn’t poop for days after starting the Tylosin was actually normal, and I didn’t need to be worried. Probably she would have told me that if we’d actually spoken last week, but it was kind of done through intermediaries.
Her CBC numbers from last week were not good — about 14%, which is about where she was before she had the blood transfusion. There is some signs that the drugs are helping a bit in the detailed results, but the overall red blood cell count is still quite poor.
That said, her cyclosporin levels were also quite low, so she’s not retaining enough to be therapeutic, which would possibly account for the reason that they aren’t helping much.
The plan of the moment is:
1. Continue her on Tylosin, because the diarrhea will probably come back.
2. Add Cyclosporin once per day for the next 2 days. If the diarrhea does not come back:
3. Add Cyclosporin a second dose per day in order to get the concentration up to therapeutic levels.
4. Continue her on vitamin K2.
5. Continue her on Prednisone.
I’ll check in with Dr. Martin on Thursday by phone and then we’ll do a recheck appointment about 2 weeks.
Considering the difficulty I’m having getting pills into her these days, the next few weeks are gonna be fun times.